24th of December 2015: For Christmas…
For Christmas and the new year… …we wish you the same unlimited love, unconditional trust and enormous strength Luka left to our family. We will carry his gift in our heart ❤️…forever!
Weiterlesen →Archiv für das Jahr 2015
Wednesday, 18th of November 2015: LUKA
Sadly Luka had to leave us today. At 9:35 he stopped breathing after struggling for such a long time. We feel blessed that he was able to leave quietly and in peace after all….a typical Luka! Give us some time … Weiterlesen →
Sunday 15th of November 2015: sleepless nights
After two sleepless nights with severe fits and seizures we had to sedate Luka -slightly- hopefully he is a bit more stable tonight. anyhow we all do not want to be alone tonight……
Weiterlesen →Friday, 13th of November 2015: Heartbreaker…
It is heartbreaking to watch Luka literally disappearing. Day by day he is loosing more and more control over his body and I have the feeling I am loosing my mind more and more. At least we still have the … Weiterlesen →
10th of November 2015: Pain control….
…mission fulfilled! After some sleepless nights we had to take the decision to -lets put it this way- ‚almost sedate‘ Luka in order to get the pain under control. Finally last night we had almost 12 hours of sleep…. we, … Weiterlesen →
9th of November 2015:Love is….
Love is….. ….to smile even though your heart threatens to break. ….to smile back even though you are in agony. …to play a board game even if you rather want to break down. ….to play a board game even if … Weiterlesen →
November 1st 2015: Moments….
Looking back at the last 4 weeks, we have been lucky spending some good moments with Luka. It seems he concentrated and saved all his remaining power for a few occasions. We have not been able to go away for … Weiterlesen →
Friday, October 2nd 2015: good days and bad days….
Reading through my last note makes me wonder where time goes….and even though our whole life is about time right now… Thinking back of the day when we spoke to the kids about the stage of Luka’s illness seems to … Weiterlesen →
Wednesday, September 2nd 2015: …quiet period…
Dear all, sorry for being so quiet for so long but unfortunately we have to get prepared for the worst…I will provide you with more information asap but tonight we have to have another Raclette evening and I am in … Weiterlesen →
Saturday 8th of August 2015: first impressions…
Majorca! So familiar, so loved, so hot this year !!! We are having a good time but a bumpy time…First two days have been great but then Luka came down with terrible tummy aches. Possibly a tummy bug…possibly not…. Don’t … Weiterlesen →